Category: Communication

0

So Tell Me What You Want What You Really Really Want

I have a lot to say so grab your coffee and settle in. Actually, Aidan has a lot to say and I think you’ll want to hear it. First, I wasn’t entirely sure how successful Aidan would be with the Speak for Yourself app when he started using it just four months ago. With the buttons being so small I saw two challenges for Aidan. First, his fine motor skills are less than stellar. Sure he has...

0

Yale Nurses Score and A+

I started my presentation to the Yale Pediatric nursing students by telling them why I love nurses. It seemed like a good place to start. Nurses saved Aidan’s life and advocated for me when I couldn’t be bedside in the NICU. Then I asked the students to tell me what they noticed about Aidan (who was tooling around the classroom), what observations did they make, what words would they use to describe him? They were...

4

Speech Update

Aidan has been using his Speak for Yourself App with keyguard for two weeks now. We went into this knowing that Aidan understands cause and effect, can isolate his pointer finger and shows intention to communicate. To get Aidan started, we’ve used his most motivating activity. Can you guess what that is? Yes, driving. We’re using a core word (on) in a totally functional way. He actually needs someone to turn his wheelchair on. Check...

17

Standing in the Way

Aidan communicates in many ways but using words formed by his mouth is not one of them. His iPad is one of his primary tools of communication. He has long understood cause and effect and has shown intent to communicate, or he reaches out to push buttons. Buttons that say what I want them to say. His app is easy to use and allows him to participate in class and make requests at mealtime. Here...

29

Letter To The Others

You’ve seen me at the playground with my son and passed us in the mall.  He is the one in the wheelchair, the one who drools, and vocalizes with insistence instead of words. I owe you an apology, not for who my son is, but for what I’ve done to you. I tend to be pretty zealous about the words you choose, and in doing so probably shut you down. You see, I really don’t...