Big Fat Lie
1. Aidan was told he would live a normal life plugged into a ventilator only at night. (True) That was one of the early diagnoses. It didn’t stick but it sure left me to wonder about doctors’ very skewed view of normal.
2. Babies get so much from eating orally, other than nutrition. They obviously get stronger. They also get used to different tastes and textures. The more time you have a g-tube the less time you spend on those skills or sensory exposure. So, we were definitely told Aidan would never be a champion eater (true) and boy, were they wrong. He eats all the same table food we do, minus things like steak that are hard to pull apart.
3. No doctor ever told us he would never walk or talk. (Lie) They always said let’s wait and see, especially since he didn’t have a specific diagnosis. As he got stronger, the doctors just said he’s moving in the right direction and there’s no reason for him not to continue to do so. That’s been his path. Slow and steady wins the race.