Today was a much better day for Aidan and a much more involved day for myself. When he saw me this morning, he reached his two hands out in his “I’m ready to walk” sign. So good to see him feeling up for that and so discouraging that we’re weeks away from that kind of movement. For breakfast Aidan drank 8oz of water and 4oz of chocolate milkshake. He continued to stay well hydrated all day. The nurse brought up some chocolate Pedia-sure to boost his calories. Here I was thinking I’d raised a refined chocolate connoisseur who would turn his nose up at such junk. Nope. Chugged it right down even as I gagged at the smell.
Our nurse today was wonderful. (big shout out to Mike) He started the day by asking if we were ready to go home, and while I was pleased with Aidan’s showing at breakfast, I didn’t feel safe taking him home until he’d had one full good day. Mike totally got that and spent the day patiently answering my questions and helping me think through how to do things at home. I had also been concerned about Aidan’s elevated heart rate and Mike explained why it wasn’t an actual medical concern and when to tell if it would be (which will not likely be the case with Aidan). It’s easy to get glued to monitors and numbers in the hospital while missing the bigger picture.
My Medical Mom friend came and spent the day with me which was incredibly helpful as Aidan’s care was more involved today. We put Aidan in his wheelchair, bundled him up and took him out to the garden. He GIGGLED! It was wonderful to see him so engaged and he was even at the end of his pain killer dose when he GIGGLED! (If you friend us on FaceBook you’ll get to see a picture of that tomorrow). My Medical Mom friend is currently doubling as my interior designer, so on our lunch break we talked colors. It was great to focus on something else and so good to do so specifically with her, knowing she understands the weird dichotomy between the real world and the hospital. (Yes, I love how the green goes so nicely with that khaki and do you think I should always give him a taste of valium before I transfer him and squish his hips?)
Hospital world is weird and tiring, even when you do nothing but wait and watch. I haven’t read any of my trashy magazines nor did I finish the book that I’m loving right now. I had all these plans for correspondence and blog ideas too. I can’t recall at this point what I’ve been
So tomorrow we come home. On to the next phase of recovery…..