Thoughts on life, disability, and the power of connection.

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Aidan goes to Bowdoin

Let’s talk about the topic I’ve specifically been avoiding. Aidan, Liam, and the big departure. I know I will be both grieving AND excited when Liam goes to Bowdoin. This school is the right fit for him and he has so many grand adventures ahead. And yet, he’s a mini me and is the joy and laughter that fills this house. I’ll feel all the feelings and I’m good with that. But what about Aidan?...

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We Graduated!!!

We did it! We graduated a kid and we survived. Actually, Garreth and I did more than survive; we glittered joy on the entire big week. Listen, graduating a kid is no small thing. But add to that the dynamics of differing expectations, varying levels of emotional bandwith, logistical chaos, and, well, it’s a recipe for a mini disaster. Garreth and I excel in crisis situations (the sweet spot of our marriage is the hospital)...

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Red Carpet Week

This is it. The week leading up to Liam’s graduation. Full of celebration and anticipation. In truth, so far, it hasn’t been quite as hard as I expected. I know, I know. There’s no saying what the actual graduation ceremony will hold for me, but I thought the weeping and wailing and rocking in a corner would have started by now and it hasn’t. The school calls it Red Carpet Week as there are little...

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As You Become

For my Bowdoin bound boy in honor of Bowdoin One Day. ***** I hope you stay curious that your brainiac wheels keep turning, wondering, asking questions about the world around you and the topics before you that you spend hours with your nose in a book stretching your mind, and hours in conversation stretching it more. I hope you remember when you tank a test that your work ethic is more important than the letter on...

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Being Broken

A few months ago I threw my back out. It was the kind of injury that left me screaming in pain, crying from frustration, moaning in agony, and constantly squirming looking for relief. I have never known pain like this. Every step was fire shooting through my leg. I left the couch only to use the bathroom and go to bed. Over two weeks, I was able to walk with less pain, but was still...

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A peek at inclusion

I’ve been wrestling with, fighting for, and wringing my hands over inclusion for a long time now. I have to share this one fabulous example of a great project that Aidan did in English class, dreamed up by his aide who believes in him and has high standards for his learning. Word Book What is it? Aidan chooses two or three words on his talker and his classmates write or draw in response. Here’s what...

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Hope is the fuel we run on

  Non-verbal. Non-ambulatory. Seizure disorder. Genetic mutation. Spinal fusion. All phrases used to describe my son. All true. All words I want to throw out like yesterday’s trash. My son Aidan has a rare genetic disorder and he’s pretty incredible. I know, I’m his mom and believing in him is my job…..   Read the rest over at HealthiVibe

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Boys will be awesome

This kid right here…   My heart. I thought I would be getting all weepy in this season of lasts. His last team dinner at our house, his last cross country meet, his last awards night. These events are scheduled to happen in the next few days but I’m not feeling that sense of grief I thought I would. Liam has been working hard on his college applications with little input from myself. He’s taking...

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Growing Up

This picture was taken five minutes ago: These brothers are telling a lifetime worth of secrets. What it will be like when one walks into the room and the other always laughs, or how they’ll star in daddy’s stories as Tonto and Squanto, and how to play captain of the ship covering your brother in empty cardboard boxes. These are the stories siblings tell. Stories of family vacations, playing ball, baking sweets. Pieces of everday life. I’m...

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Summer into Fall

Today is my boys’ first day of school. I didn’t realize I wouldn’t write this summer. I suppose that’s in part because summer is for lazy days. We made it to the beach a few times and found a favorite lake to walk around. But summer is for busy days too. I made it to England and then I survived staying home when Garreth made it to England. Liam ran a big race and met a...